Skip to main content

Awakenings of Our Own

Where does our human soul reside? In our own consciousness of being (present, through sensation, the physical world, interaction with others), in our memory of being (past, fragments of memory, whole recitations, a library of experiences tucked away but seldom retrieved), or in our creative being (imagining what our sensate selves have not encountered, extrapolating from the “seen” and leaping into the “could be”)?

For most people, it’s not necessary to contemplate a splitting of any of these selves. We grow, naturally, from infancy to adulthood, the multiple parts of our brains weaving together a consciousness that takes in the enormous amount of data from the world and turns it into judgment, narrative, and art.

I’ve been re-reading Oliver Sacks. If you’ve never read his works, they are science and soul, side by side. As each patient case comes to him “presenting” with symptoms, he proceeds with the neurological evaluation, but also reveals the deeper ways in which each individual lives within the context of his/her life. In the story arc of each diagnosis, a sorrow, a victory, in some cases both, are revealed.

A colleague once told me she worked for a beloved boss who was unrelentingly perfectionist. She had high expectations, and demanded everyone meet them. A mutual friend had a different experience with the same boss, and found her relaxed, charming, and motherly.

“That’s because you worked for her after her heart attack,” said the first colleague, slightly exasperated. “And I worked for her before."

And it’s true, a significant illness and brush with mortality changes everything in your life, not the least of it is your perspective. The illness and its memory is a new part of our selves, a companion of sorts.

“How are you doing? How is Jon doing?”

He is doing great. Time is a great healer. The therapies are at an advanced level now, and ramping up in speed, duration, and complexity. He’s taking rehab seriously, and following up on exercise, tasks, and medical advice. We are lucky in so many ways, not least if which is that we live in a city with one of the best acute care and neurological therapy departments in the country, if not the world—we are a Keck Medicine of USC family, now and always.

How are we doing? How are we really, really doing?

Well I can only speak for myself. I pack up all my troubles in my old kit bag at the end of the day, and put them aside in an imaginary locker in a railway station with a million things that need to be done, and just go home where someone is waiting for me. Sometimes inspiration or duty calls, and I plop down a note or an idea for work, in between the lull of reading, cooking, napping, walking, browsing, contemplating, meditating, etc., while Jon reads, does therapy, cooks, tinkers, naps, contemplates, browses, picks up on building management projects, etc. We make plans with friends, with family. We watch crime dramas. (His are American, mine are British.)

Love, work. Work, love. More love. This is where we have found our humanness (thank you, Dr. Freud.)

What would you do if you could stop everything, and choose what you wanted to do every day?

Start a ripple that makes the world a slightly better place.
Be of service to others, and to a greater purpose than just yourself.
Live life fully, with joy and kindness, and laughter and gratitude.

Limitless love, gratifying work.

I can say, we are both walking with purpose, literally and figuratively. Making each step count. Looking forward, hearts open to the endless sky.

Patient in waiting.

Waiting patiently.

Loving.

Every day.

Namaste.


Comments

Popular posts from this blog

Visit Information

Hello Friends and Family, First of all, thank you thank you thank you for all your words of support, your prayers, gifts of good thoughts, positivity, and well wishes. It all helps, believe me! We are truly grateful and feel blessed to have the absolute best network of wonderful human beings--HUGS! I'm using this blog to update folks on, well, pretty much everything that comes across my mind, so feel free to check in if you're wondering what's going on. I write things down because I'm making lists, lists, lists constantly, and also because writing helps me figure out whether I'm coming of going from one minute to the next. I'm processing things through language. My heart is cracked wide open and everything is spilling out through my words, as Jon is working really hard to find his again. So some logistical things first. Just want to tell you what to expect if you are up to a visit to the ICU to see Jon, so you don't run into any surprises. He is in K

Things I'm thinking about

1. Jon's blood pressure, the EVD and his cranial pressure, and his feeding tube (when he can come off it.) especially the feeding tube. That totally blows having it in, since he has chewing and swallowing down just fine. 2. Corey's AP Chem test on Monday. He seems pretty cool and confident about it, and seriously seems to have his act together on several fronts. I would be a hot mess in his shoes, but he's brighter than me, fortunately. 3. All the rigamarole I'll have to sort through on the accounts that I don't have logins for--utilities, personal cards, car insurance, etc.--I wonder if companies run into this situation often? My guess is yes. We probably aren't the only couple in America that divides up responsibilities and doesn't sit down to exchange passwords and account information. Luckily we have each other's phone lock codes, otherwise I'd really be screwed. Off to the bank on Monday to get some things in motion. 4. Casey's newfoun

Head scars and all

It’s been an eventful four days. In some ways, exactly what we expected, and in other ways, completely surprising.  When Jon was discharged from the hospital, we were told he was a fall risk. He had to be attended to at all times and even had a night sitter, as he would try and get around, turn off the bed alarm and try and do things around the room on his own. (The last night before he came home he didn’t talk much, but that might have been due to tiredness, or the presence of the sitter in the room.) Driving home, he was quiet but alert, and seemed to be taking in everything around him. The next 48 hours were harrowing, not medically, but because this was a transition to a new level of interaction that we all were not sure about.  When someone comes home to convalesce, it’s difficult. Home is where you’re in control, you do what you want, you know how everything works. That isn’t the case after a prolonged hospital stay. Prior to Jon’s homecoming, Alex and the boys and I