Our New Normal

1. Jon's blood pressure, the EVD and his cranial pressure, and his feeding tube (when he can come off it.) especially the feeding tube. That totally blows having it in, since he has chewing and swallowing down just fine. 2. Corey's AP Chem test on Monday. He seems pretty cool and confident about it, and seriously seems to have his act together on several fronts. I would be a hot mess in his shoes, but he's brighter than me, fortunately. 3. All the rigamarole I'll have to sort through on the accounts that I don't have logins for--utilities, personal cards, car insurance, etc.--I wonder if companies run into this situation often? My guess is yes. We probably aren't the only couple in America that divides up responsibilities and doesn't sit down to exchange passwords and account information. Luckily we have each other's phone lock codes, otherwise I'd really be screwed. Off to the bank on Monday to get some things in motion. 4. Casey's newfoun

Hello Friends and Family, First of all, thank you thank you thank you for all your words of support, your prayers, gifts of good thoughts, positivity, and well wishes. It all helps, believe me! We are truly grateful and feel blessed to have the absolute best network of wonderful human beings--HUGS! I'm using this blog to update folks on, well, pretty much everything that comes across my mind, so feel free to check in if you're wondering what's going on. I write things down because I'm making lists, lists, lists constantly, and also because writing helps me figure out whether I'm coming of going from one minute to the next. I'm processing things through language. My heart is cracked wide open and everything is spilling out through my words, as Jon is working really hard to find his again. So some logistical things first. Just want to tell you what to expect if you are up to a visit to the ICU to see Jon, so you don't run into any surprises. He is in K

Where to begin? Well it began at the beginning of the week, but I can't think about that right now. I want to write everything down, I don't want to forget a thing, because every minute of the day I'm thinking about the day you come back to me, come back to us. You're still you, even when you can;t remember what that means, and I see you're searching, searching for the right words and the right memories that fit what you're seeing, what you're hearing. You'll be back, and I want you to know how hard you've worked every day to find your way back. To me. To us. We're going to be better than ever. Today Roger Ho visited you early in the day, and he hadn't seen you since you were in the ER. You greeted him with a "Hi Roger," and told your nurse, Bea, "That's my brother." She quizzed you about what your name is, and you replied "Jon." Roger chatted away like any regular day, and you nodded and made the usual