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Love you like crazy cakes

Today was a little bit harder and a little bit easier at the same time. 

Alex, Chris and I met up at the hospital at noon, because meal times are the only “sure” times that Jon will not be in one of his three hours of therapy work.

The good news is that Jon has regained his appetite. He seems to really be partial to fruit. Maybe his body is craving the liquid and the energy of sugars.

Physically, he still has his muscle mass intact, it’s the level of coordination and balance that his brain has to re-learn. I never realized how many steps are involved with just maneuvering to turn a corner. I glanced at his schedule for the day, and remarked, “Oh good, looks like your schedule ends at 2 today.” He commented, “It’s the same schedule every day.” That was a surprisingly long comment, especially since he started therapy.

I think he’ll be pretty tired most of the time we see him, at least for the next week or two, since he’s in intensive activity, and after that, his brain needs sleep to consolidate all that neural information.

I came back to the hospital after his OT session, and he was napping in a chair, so I moved him to bed and settled him in. With his magazine on his chest and his glasses on, he looked so much like his old self snoozing on the couch, it made me pretty happy. 

When I got back home, I went to a yoga class at long last, then picked up dinner. The boys did laundry, and then they helped me cover the floor upstairs to get ready for the workmen to return tomorrow for resuming the earthquake retrofit. After a quick run to Trader Joe’s, setting up for breakfast and lunches tomorrow, I sat down to comb through some mystery paperwork.

My daily visits to the hospital will probably mostly be early mornings during the work week, since he’s so tired in the afternoons. It’s less exhausting in terms of running around, but I also worry more when more time passes without me there. And I miss him, like crazy.

It looks like this might be the ways things are for the next few weeks. And I’ll miss him like crazy every day.


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